Much has happened since my last post. I’ve seen my Ophthalmologist and based on that had to see the Neurologist again. The Eye Guy said the visual disturbances I was having was not an ocular migraine but that he believed blood was not getting to my brain properly. Hmm…
I was seeing the Neurologist because my Factor 8 clotting factor was off the scale. We checked it again, it’s still high, but because there is zero history of venous clotting issues and I tend to bleed a lot post IV pokes, biopsies, infusions, etc. She’s not worried. This is good! No blood thinners. Yay! She just doesn’t know what to think about the visual stuff (which, by the way, were quite geometric and colorful, psychedilic actually). If I have more problems she’ll reevaluate. They looked kind of like this only a full half circle in both eye independently. The bold black like was neon yellow, this happened twice.
We went over the stroke again. Here is what she believes happened. I had a fall quite awhile back, year and a half, two years? Anywhom… I hit my neck really hard falling into the bathtub… backward and HARD! She believes this was the initial trauma to my neck that started a very slow bleed in my right vertebral artery.
That slow bleed backed up with cells and other stuff and started building up and blocking off until a clot formed that occluded the entire artery. Quiet stroke #1 in January, serious stroke in February.
I’m doing really well post stroke though. I’m lucky. I have been having a hellacious time though with my body- neuropathy, fibromyalgia, RA, all were screaming pretty loudly since the stroke. I was pretty depressed about all of this pain!
Ever the optimist, though, I decided to do some research and decided to not just go gluten-free, but go all out and do the AIP diet. I felt like I was trying to save myself, a last ditch effort. I talked about this in my last post. So, August 15th I started on a few day bone broth fast and started the diet. I had to buy a lot of strange new shit… stuff, real health food stuff. But I wanted to go all out and do it right!
Almost by the end of 2 weeks I could actually see the inflammation leaving my face. I looked different. I shed 5 pounds. The very uneven toned facial skin seemed to be more even, complexion nicer. I didn’t use my cane at all around the house. It stayed next to my bed. My neuropathy and RA had vastly improved. AT TWO WEEKS! The best part??? – my stomach and gut didn’t hurt… and I was eating vegetables that used to send me into massive discomfort. <whispering> I’m having the first normal poops in years! Hey, it’s a gut healing diet!
So then what happened?
I know exactly what happened. A few days before I was getting so hungry, wanting and needing some comfort food. I did my due diligence and went to main health site I was using who suggested when this happens to eat more starchy vegetables like sweet potatoes, squash… I did. And then… then those donuts were right in front of me. Later I made mashed potatoes, and the next day I had half a sandwich! Schneikies!
Aight, ‘den. <sigh> I’m back on it. I decided when things get really rough I’m going to make tapioca pudding with coconut milk. Did you know tapioca came from cassava? A tuber. Mind blown. I can also use a little monkfruit to sweeten just a tad.
It’s also true, you know, now that I have this awareness I can fight off the urge. I’m also going to start a food journal. I know, I know, some of you are surprised I’m not doing that already. Well… I’m a little slow. This is the food tracking page I’m going to use. And it’s also the website that I go to first. There are several others I look at too, but this is the ONE! https://autoimmunewellness.com/the-role-of-tracking-on-the-autoimmune-wellness-journey/
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